Main Page|Neurofibromatosis| NF-2 | Children & Adolescents | Associated Conditions | Photographs | Genetics | Support | Newsgroups | Personal Touch | Search Engines | About This Site | Disclaimer | E-Mail | Message board
 
 
Aqua Ribbon for NF AwarenessNeurofibromatosis ResourcesAqua Ribbon for NF Awareness

http://neurosurgery.mgh.harvard.edu/NFR/

Our FTP server deleted half of our files ... so these files are from backups, which may be out of date. PLEASE be patient while I attempt to bring the site back up to date!

One stop shopping for the BEST Neurofibromatosis information on the Web!


Welcome!   My name is Jason, and I have Neurofibromatosis, type 2.   I've recently taken over the site from the original owner.  She has collected links to some of the finest sources of information about NF on the Internet.   There is a great deal of information out there!   Unfortunately, a lot of it was not written with regular people in mind.   On these pages, you will find carefully selected sites - only the best.   I hope that this information will help answer your questions and that you'll find it helpful.
 



 

INFORMATION:
general information on both types of Neurofibromatosis, most including in-depth discussion of Type 1, also known as Peripheral Neurofibromatosis or von Recklinghausen's Disease

MORE INFORMATION ON NF-2 AND ACOUSTIC NEUROMA:
information on the more rare Type 2, also known as Central Neurofibromatosis or Bilateral Acoustic Neurofibromatosis

CHILDREN AND ADOLESCENTS:
links pertaining specifically to children and teenagers who have NF
(includes scoliosis, epilepsy, and learning disability links, among others)

ASSOCIATED CONDITIONS:
additional conditions which may accompany NF

PHOTOGRAPHS:
photographs which demonstrate different visible aspects of NF, Type 1

GENETICS:
counseling, diagnosis, and research

SUPPORT:
support organizations and internet support groups 

NEWSGROUPS:
Usenet newsgroups which may be of interest

A PERSONAL TOUCH:UPDATED
home pages and articles by people who have, or know someone who has, NF or Acoustic Neuroma

SEARCH ENGINES:
looking for information not yet covered by this site? 

ABOUT THIS SITE:
disclaimer, credits, awards, and author information 


If you notice that I've missed something terrific, please let me know and I'll update the page. Also, if you find that a site is no longer up, or the URL has changed, please drop me a line
 
 

Feel free to link to this page. Here's a banner, if you'd like to use a graphical link:
Neurofibromatosis Resources (One-Stop Shopping for the BEST NF Information on the Internet!)

Add to our message board

View Message board  

Add to our message board  Guestbook   Visit the message board
 
 



 

Neurofibromatosis Webring

This Neurofibromatosis Webring site
is owned by Neurofibromatosis Resources.
[ Previous 5 Sites | Previous | Next |
| Next 5 Sites | Random Site | List Sites ]
 

Recreational Software Advisory Council on the Internet


Neurofibromatosis Resources / E-Mail / updated June 10, 2000 

You are lucky visitor

Add to our message board

Hosting by WebRing.