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*Even though I look well and don't complain, please understand much of the time I do not feel well. I am in pain and have overwhelming fatigue. *Please understand when I tell you I can't go on an outing or engagement, I so much wish I were able to do all the things I'd like to be able to do. *You are experiencing a loss, the loss of the healthy me. Tell me about your feelings of sadness and anger about this loss, but don't be angry at me. I didn't choose to have fibromyalgia. It is not my fault and I grieve too. *Let's do things together on days when I feel good, or earlier in the day when I have the most energy. Can we go out to brunch, rather than dinner? Can we celebrate at home? *When we go to the zoo, please understand I need frequent rest breaks. We can have fun and enjoy our times together when you adapt and enjoy the zoo by being a good sport and going ahead without me. *When I'm having a flare-up, please ask me how you can help. Offer me a back rub. Remind me that even though the pain is bad now, it won't last forever. *Believe me when I say I have pain. So much of the time, I suffer in silence! Tell me you believe me. *Support me in all I must do to take care of myself- rest, sleep, relaxation, medication, medical care, support and exercise. *Keep telling me you care about me, affirm my courage and my efforts to get better. *Recognize I feel irritable when I am fatigued and in pain. I don't mean to hurt you with it. *Hug me, give me warm touches and warm, loving words of acceptance. *Don't tell me to think positive, to think about other things or to get out more, as I'm doing the best I can to live positively with the limited energies I am given. *I appreciate all you do to help support me, even when I'm not able to tell you so. *Always remember how much your love and support are critical to my well-being and success to meet the challenges of living with fibromyalgia. |
| Taken from: Taking Charge of Fibromyalgia by Julie Kelly and Rosalie Devonshire. |