International CMT Support Organizations



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Charcot Marie Tooth Association

Charcot Marie Tooth Association of Australia

CMT Austria

CMT Belgium

Canada

Quebec, Canada

CMT France

CMT Germany

CMT Israel

Italy

Pakistan

Quest Magazine

South Africa

Switzerland

The Netherlands

United Kingdom



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UNITED STATES


Charcot-Marie-Tooth Association (CMTA)

Address:
2700 Chestnut Street,
Chestnut, PA 19013-4867
Telephone:1-800-606-CMTA
Fax: 1-610-499-9267
Email: CMTAssoc

Services:
Local Support Groups
Doctor Finder for the United States
Patient and Medical Conferences
CMT Chat, and Discussion Forum on Website



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AUSTRALIA


Charcot-Marie-Tooth Association of Australia Inc., Inc.(CMTAA)


Address:
Charcot-Marie-Tooth Association of Australia Inc.,
Building 51,
Concord Hospital
Concord 2139 NSW Australia
Telephone (02) 9767-5105
Fax No. (02) 9767-5167
e-mail: Contact

Office hours: Monday, Wednesday, Friday, 9.30 am to 2.30 pm.

Regional Support Co-Ordinator Areas: New South Wales: Sydney, Albury/Wodonga, Canowindra and Newcastle.
Queensland: Brisbane and Mackay
Victoria:Melbourne, Bendigo and Albury/Wodonga.
South Australia: Adelaide.
Western Australia: Perth.



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AUSTRIA


CMT Austria


Kontakt: Mag. Sabine Bayer
Pomisgasse 13/2
A-8010 Graz
Tel./Fax: +43 (0) 316 81 43 84
e-mail: Contakt

oder: Elke Trummer
Mühlgasse 6
A-8330 Feldbach
Tel: +43 (0) 31 52 27 22
Fax: +43 (0) 31 52 43 40 16
e-mail:Contakt



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BELGIUM


CMT Belgie


Secretary: Quinten Matsijslaan 33
2280 GROBBENDONK
tel. / fax : 014 51 79 44
E-mail :Contakt Bareldreef, 100

International contact for Belgium

Services:
Newsletter (CMT Nieuwsbrief) printed in German




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CANADA


CMT International (CMTI)... CMT News... CMT World


The first Canadian International CMT Organization (CMTI) has evolved and changed over the years

CMT International (CMTI)

followed by

CMT News at the time of the founder's retirement

Today it has evolved to

CMT World

There is a large amount of Charcot Marie Tooth Disease Information on the above three websites. Some of it is old but a large amount of it is applicable today to CMTers.




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QUEBEC, CANADA


Charcot-Marie-Tooth Quebec

Manon Labelle - information
964, Dosquet
Longueuil, Quebec
J4L 3V5
Tel: (514) 679-8261

Works with the Muscular Dystrophy Association of Canada (MDAC) and publishes
information for those Canadians who prefer their information in French.



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FRANCE


L'association CMT - France

Correspondence:M. Philippe de Maisonneuve OR Mme Bernadine Robert
CMT-FRANCE
7 rue du Pied des Fourches
23270 Chatelus Malvaleix
Tel/Fax 0 820 077 540

Email: cmt-france

CMT France also has a Belgian membership and prints the CMT-France Bulletin in French They also have addresses for medical help in Spain, Switzerland and Belgium




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GERMANY


HMSN - CMT Germany

Konzept: Sandra Conze
Aachen, Germany, Europe, Earth
Email: hmsn.de

Gestaltung: Melanie Maas
support information available in German




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ISRAEL


CMT Israel

Elana Shapiro
Hagome 14/36 Gilo
Jerusalem, Israel 93856




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ITALY


A.I.C.M.T. -Associazione Italiana malattia di Charcot Marie Tooth

Contact:: Italian CMT Association (AICMT)
Ms. Paola Gargiulo
via di Baccanello 339-00064
Rome, Italy

Services: - newsletter/web site/ book/
Email: Ms. Paola Gargiulo A.I.C.M.T.




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PAKISTAN


Rabia Moon Memorial Institute of Neuro Sciences
Contact: Dr. Arsalan Ahmed
E-mail: neuroscience - cyber.net.pk



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QUEST MAGAZINE (MDA of USA)


Muscular Dystrophy Association Inc.
3300 East Sunset Drive
Tucson AZ 85718-3208
tel: (520) 529-2000
e-mail: Publications



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SOUTH AFRICA


South African Contact
Hettie Woehler
e-mail:
Hettie Woehler



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SWITZERLAND


Regionalgruppe Bern und Umgebung
Trudi Sulzberger,
Beatrice Wege 11,
3600 Thun
Switzerland
Tel: (033) - 2228142



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THE NETHERLANDS


Vereniging Spierziekten Nederland

Lt. Gen. van Heutszlaan 6
3743 JN BAARN
The Netherlands
Tel: (35) - 5418400
Fax: (35) - 5421616

Contact: Henk Dikkers
Irisstraat 49
7471 AT Goor
The Netherlands
e-mail: Contakt

Regionalgruppe Zurich und Ostschweiz
Karin Oberhansli
Winterthurerstrasse 30
8610 Uster
Switzerland
Tel: (01) - 940-5072



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UNITED KINGDOM


Charcot-Marie-Tooth United Kingdom



Address:
PO Box 5089,
Christchurch,
BH23 7ZX, UK
Telephone - 0870 7744314
Email: - secretary - cmt.org.uk

Newsletter
CMT U.K. has a large membership and support groups throughout
the country. They are also in touch with people who have CMT in Ireland and Scotland and across Europe.
ComMenT is published regularly in English.


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"Charcot-Marie-Tooth Disease - Survey and Information"
was created by
Dorothy B. Gosling(Retired R.N.) and Kathleen Lopp Smith (deceased)
It is maintained by
Dorothy B. Gosling (Retired R.N.)
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