If you find that any of these links are outdated or have changed, please notify me by e-mail.
Thank you.

• Advocacy: Government and Legislative Links
• Disability Links
• Health Care Links
• MS Links
• Voter Information and Registration Resources
• Web-Related Links
• Web Rings  (NOTE: As of  Nov. 19, 2001, only the Disability Studies Web Ring link on the LRM's Place: Web Rings Page was active.  Due to problems experienced by thr "ringmasters" and some changes in the services hosting the rings, the links to the MS Web ring and the Disabilities Web Ring are not currently active.  If this changes in the future, I will correct the links on the Web Rings Page.)

 

Advocacy: Government and Legislative Links

• ADA Information Services 
  
• Advocacy Center -- National Multiple Sclerosis Society
• California Home Page: Search and Indexes
• California Legislative Search Engines
Search for California state legislation by text or bill number
• Center for the Advancement of Nonviolence
Not directly concerned with health care or disability, but an interesting site promoting peaceful solutions to problems.  Clearly, violence is a public health problem, and far too many people become disabled as a result of violence.  Furthermore, individuals with disabilities are far too often the victims of violence.
• Welcome to CHFA!
  California Housing Finance Agency. Some assistance may be available for people with disabilities.  
•  The Electronic Activist - California  
•  The Electronic Activist 
• E-The People : America :
  An interesting advocacy tool.  Create, sign and send online petitions.

• Fedstats: One Stop Shopping for Federal Statistics
This site may be a useful resource in analyzing issues and in preparing to do effective advocacy regarding those issues.
• HCFA-Nursing Homes, Home Page
Health Care Financing Administration's (HCFA) Nursing Home Database
• NCSLnet: Internet Sites of the State Legislatures
• THOMAS: Legislative Information on the Internet (national)
• U.S Congress: E-mail Addresses
• Understanding Medicaid Home and Community Services: A Primer
• United States House of Representatives -105th Congress
• The United States Senate
• U.S. DOL - Office of Disability Employment Policy
Official site of the U.S. Dept. of Labor's Office of Disability Employment Policy.
• West Los Angeles Empowerment Team Home Page
I'm not sure whether this site is being updated, but it offers some useful information and links.
• Who's Your California State Senator, Assembly Member?
• Who's Your Representative (U.S. House of Representatives)?
Identify your representative in Congress by entering your address and/or ZIP code.

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Disability Links

• Ability's Web Directory/Internet Resources and Disability & Health Research Index

• ABLEDATA
Direct link to [ABLEDATA, Explore the World of Assistive Technology]
Direct link to [Informed Consumer's Guide to Accessible Housing]
• Adobe Acrobat - Online conversion tools for Adobe PDF Documents  
  Information about accessibility features in Adobe Acrobat. Online conversion form allows users to convert .pdf documents to .html format. Conversion also can be requested by e-mail.
  
• About Living Without Limits
Web site for Dr. Bob Enteen's radio program on disability and health issues. Site includes link to download software for Web access to program.
• Access-Able Travel Source
• AccessLife.com - News, information and products for the disability community
• Accessible Traveler's Database
• Accessible Society Action Project/ASAP
• The Access Project
• ADA Accessibility Guidelines (ADAAG)
• Air Travel with a Disability
• AAPD - American Association Of People With Disabilities
• Americans With Disabilities Act Information
• Amtrak: Accessibility Information 
• Assistive Technology Applications Certificate Program
This is the online portion of a certificate program in assistive technology that is offered through California State University at Northridge.  It includes many worthwhile links and readings.  (I'm proud to say that one of my pieces is among the readings.)
• Assistive Technology Column Archives (Business Week)
This link takes you to the archives of Business Week's columns on assististive technology.
• An Assistive Technology Expo
• Association of Disability Advocates - Home
• Barrier Breakers
Disability rights web site with information about the federal PASS (Plan for Achieving Self-Support) program.
• Beyond Affliction: The Disability History Project  
  
• California Building Standards Commission
• California Department of Rehabilitation
• California Disability Alliance (CDA)
• California Foundation for Independent Living Centers
• Californians for Disability Rights, Inc.
• CanDo.com Home Page
An online magazine for people with disabilities.
• CA SILC Home Page
Home page of the California State Independent Living Council.  Site includes links to reports on several disability-related subjects, including employment, transportation, housing and independent living.  Most of these reports are in PDF format.  A link to download a free reader is included at the site.
• California Assistive Technology (AT) Network  
• Center for An Accessible Society Disability Issues Information 
• Centers for Independent Living Web Sites
Information on independent living, including links to relevant sites, compiled by June Isaacson Kailes, Disability Policy Consultant.
• Chartbook on Disability, 1996
Facts and figures about disability in U.S.A.
• Computer assistive technology abilityhub for disability and disabilities
• Consortium for Citizens with Disabilities
• Crip Commentary: Columns by Laura Hershey
• CROWD
Baylor College of Medicine's Center for Research on Women with Disabilities
• DHM: Library - Browse 
Detailed site map for the Disability History Museum.
• Disable Hotline
Entry point for some worthwhile sub-pages, including Vote 2000.
• Disabled Lawyering Alliance 
• Disability Advocacy Group
Still under construction, but has some good information and links on key advocacy issues.  May not  be fully accessible (as of 5-29-2000) since links seem to use graphics rather than text.  I have notified webmaster and suggested changes.
• Disability Advocacy Work With Networking
• The Disability Benefits Information Page
Information on disability benefits programs.  Because the authors of this page have chronic fatigue syndrome/chronic fatigue and immune dysfunction syndrome, the website tends to emphasize information of help to people with those and similar disorders. However, the site also includes information that may be of  help/interest to people dealing with fibromyalgia, multiple chemical sensitivities, Gulf War syndrome, post-polio syndrome, multiple sclerosis, lupus, and other neuro-immunological disorders.
• Disability Culture, Activism, Studies, and more...
• disAbility.gov Home Page
Information on U.S. federal programs, services and resources for employers, Americans with disabilities and their families.
• disABILITY Information and Resources
• Disability Information on the Internet
• David Ferleger - Disability Law, Civil Rights & Judaism
• Disability News Service
• Disability Related Advocacy Links
• Disability Resources from Evan Kemp Associates
• Disability Resources Agency for Independent Living  
  
• Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet
• Disability Rights Activist
An excellent site full of worthwhile links.
• Disability Rights Advocates
• Disability Rights, Education and Defense Fund (DREDF)
• Disability Social History Project
• Disability Statistics Center, UC San Francisco
• Disability Statistics, U.S. Census Bureau
• DisAbility Web Sites
• DisWeb
Platform  for issues of concern to people with disabilities and others who wish to increase their awareness of these issues.
• DP2
The Disabled People and Disaster Planning (DP2) web site evolved out of efforts to address the kinds of problems faced by people with disabilities in the 1994 Northridge earthquake.
• The DRM WebWatcher: Complete Index
Inclusion and Parent Advocacy.  Links and sublinks.
• eBility Homepage
• Economic Empowerment Page of the National Council on Disability
• Emergency Evacuation Preparedness for People with Disabilities
  
• Empowerment Zone -- helping individuals and communities achieve self actualization and full citizenship

• Employment of People With Disabilities
Report of the Presidential Task Force on Employment of Adults with Disabilities.
• EnableLink.com Home
Web site for people who are blind.
• Enablemart.Com - Assistive Technology for everyone!
  This is a commercial site featuring products addressing vision, hearing, learning, communication and mobility needs. I include this link for information purposes only. It does not constitute any endorsement.
• EnabledOnline.com
  An online magazine for people with disabilities.
•  Ez Disability Project's Homepage 
• Federal Policy Barriers to Assistive Technology
  Publication from the National Council on Disability.

• GCEDP - Job Search
Disability employment information
• Geocities Disability Community Page
Disability-related sites hosted by Geocities. These are mostly personal home pages.
• HalfthePlanet.com
• Housing and Independence
• Housing Resource Center
• HUD Information for Persons with Disabilities
Information for persons with disabilities from the U.S. Department of Housing and Urban Development
• Direct link to Disability Rights in HUD Programs (Section 504)
• I-CAN ONLINE - The Leading Disability Community
• Inclusive Technology - Articles on Special Needs and IT 
• Independent Living Centers
Full state-by-state listing of independent living centers. Part of International MS Support  Foundation (IMSSF) site.
• Independent Living: disability resources & services
• Independent Living Research Utilization at TIRR
[Direct link to ILRU's Site on Disability and Managed Care Issues ]
• Initiative 2000 Web page
• Jean Nandi Home Page
Includes memorial page honoring people with disabilities.
• Job-Hunting for the So-Called Handicapped or People Who Have Disabilities
Links to Amazon.com page describing this valuable book on job hunting for people with disabilities.  Includes reviews and ordering information.
• Journals, Magazines, Online Books
• Legal Rights of Persons with Disabilities
California Dept. of Justice site
• Legal Rights of Persons with Disabilities — Directory of Services
• Librarians' Index to the Internet: Disabilities
• LILA -- Living Independently in Los Angeles
• Mainstream - Magazine of the Able-Disabled
Sadly, Mainstream has ceased publication.  As of 8-22-99, the web site remained online but hadn't been updated for some time.
• The Marin Center for Independent Living - Marin County, CA
• Medicare Information — Official U.S. Government Site
• MossRehab ResourceNet Homepage - Information and Resources for the Disabled
• Mr. Long-Term Care
A good resource for journalists interested in this subject.
• NARIC's Instant Disability Information Center
Search for disability information at the site of the National Rehabilitation Information Center
• National Center for Health Statistics - FASTATS - Disabilities/Impairments 
• National Center for the Dissemination of Disability Research
• National Center on Disability and Journalism 
• NCIL -- National Council on Independent Living
• National Council on Disability (NCD)  
• NCD Publications Page
  Excellent resource for journalists, policy makers and disability rights advocates.
• National Disability Policy: A Progress Report, December 2000--December 2001                
  
• The Americans with Disabilities Act Policy Brief Series: Righting the ADA - A Carefully Constructed Law  

• National Museum of American History: Virtual Exhibition
  

• National Organization on Disability
• National Organization on Disability (N.O.D) - News 
• National Organization on Disability - EPI Guide for Emergency Managers, Planners & Responders
  
• National Research Hospital (NRH) Center for Health and Disability Research 
• National Senior Citizens Law Center
Includes links and information on disability issues.
• New Horizons: Information for the Air Traveler with a Disability
• New Mobility
Online version of disability magazine.
• On A Roll - Talk Radio on Life & Disability
• Pioneer Publications
Includes online disability-related publications and links related to disability-related sites.
• President's Committee on Employment of People with Disabilities
• Project ACTION Technical Assistance Home Page
• Protection and Advocacy
Federally mandated system in each state and territory which provides protection of the rights of persons with disabilities through legally based advocacy.

• California Protection and Advocacy   
• Ragged Edge Magazine Online
A valuable resource for information on issues of current importance to people with disabilities.
• Section 508: The Road to Accessibility
  
• SF AIDS Fdn: Grassroots Lobbying Manual
Some good basic information on grass-roots advocacy.  I have just skimmed this, but it appears to have many very useful ideas.  Although this manual is aimed at those fighting the AIDS/HIV battle, it contains many concepts useful to anyone who is engaged in grass-roots action aimed at affecting public policy.
• Social Security Administration Office of Disability - Disability Notes 
• Social Security Administration - Office of Employment Support Programs - Red Book 
• Social Security Disability Law
Links to information and resources on Social Security law.
• Special Needs Planning - Beyond Wills and Trusts
• Survey Program on Participation and Attitudes
• drake music project: Tech Help for Musicians with Disabilities 
Because I love to make music and have found technology a great help, I was delighted to find this web site for musicians with disabilities.
• TASH Equity, Opportunity and Inclusion for People with Disabilities since 1975. 
  
• Tell Us Your Story (Disability Discussion Forum)
Personal-experience stories, essays about disability awareness, rights, inspiration.
• Through the Looking Glass
Valuable site for parents with disabilities.
• Trends in Labor Force Participation Among Persons with Disabilities, 1983-1994
• Untangling the Web
More disability-related web sites.
• Uppity DisAbility Internet Resources
• Welcome to WeMedia.com
• Western Law Center for Disability Rights (WLCDR)
• Women with Disabilities
Excellent site associated witht the National Women's Health Information Center.  Includes resources regarding a wide range of disabilities.
• World Institute on Disability
• Worth Living 
Powerful article by activist Harriet  McBryde Johnson about living with severe disability.  From Winter 2002 issue of Disability Studies Quarterly

Don't forget to check out the links on the Disabilities Studies Ring, too.  They can be found on  the LRM's Place: Web Rings Page.

Health Care Links

• The Access Project
Concerns general access to health care, not specifically disability-related access issues, but includes information that may be of interest.
• AHCPR Home Page
Web site of the Agency for Health Care Policy and Research.
• Alpha Center Home Page/Health Policy Center
• The Americans with Disabilities Act and Managed Care
An excellent discussion of ADA issues relevant to managed care and the "new ethic" of "distributive medicine."
• The Americans with Disabilities Act and Managed Care: Zamora Decision
Text of legal decision in San Antonio, TX. case holding that ADA applies to managed health-care plans.  View Exectutive Summary of Zamora decision.
• Basic Consumer Protections: How the Federal Bills Compare
(from Families USA)
• Best From The States II - 11/12/98
Best state consumer protection laws. (Families USA)
• California Citizens for the Right to Know Home Page
• California Department of Managed Care
This is the web site of the new California Dept. of Managed Care, which will take over regulation and oversight of managed care from the Dept. of Corporations as of July 1, 2000 (or sooner, if Gov. Gray Davis chooses to sign an executive order to that effect).  I have met director designee Daniel Zingale twice (as of 4-23-2000) and was very impressed by his openness and his willingness to learn more about issues of particular concern to people with disabilities.
• California Health Advocates
Web site for California's Health Insurance Counseling and Advocacy Program (HICAP), which helps Medicare beneficiaries negotiate the system.
• California Managed Health Care Improvement Task Force (1997)
• CalMedicare.org
  
• The California Patient's Guide - Your Healthcare Rights and Remedies
• Centers for Medicare & Medicaid Services (CMS)  
  
• Consumer Bill of Rights and Responsibilities: Executive Summary
• CCD Principles for Managed Care for People with Disabilities
(from the Consortium for Citizens with Disabilities' Health Task Force)
• DALTCP: Home & Community-Based Services Issues
Part of federal site on disability, aging and long-term care policy.  Lists reports and current research projects.
• Disabilities & Managed Care
Associated with the U.S. Dept. of Health and Human Services, this site provides information about research and reports regarding managed care and people with disabilities.
• Exceptional Nurse 
  Web site for nurses and nursing students with disabilities.
  
• Families USA Home Page
Information on general health-care policy issues.
• HARP
Home page of the Health Administration Responsibility Project.  HARP identifies itself as a resource for patients, doctors, and attorneys seeking to establish the liability of managed health care organizations and nursing facilities for the consequences of their decisions.
• Healthfinder (tm) - a gateway consumer health and human services information web site
• Healthlinkusa
Health links to 1000s of sites, treatment, diagnosis, prevention, risk factors, support groups.
• Henry J. Kaiser Family Foundation/disability topics
Page of the Henry J. Kaiser Family Foundation web site with links to reports on health-care topics most likely to be of concern to people with disabilities. Linked reports are in .pdf format.  To read these files, you will need to have Adobe Reader installed on your computer.  Acrobat Reader 4.0, which is available at no cost from the Adobe Web site.
• Hot Lines
Toll-free phone numbers for various medical conditions.
• International Patient Advocacy Association
• KQED.org: Public Radio: The California Report: Friday Magazine Archive 
Archived version of Jan. 11, 2002, edition of KQED's California Report Friday Magazine includes a segment on "Advance Directives"  and "futile care" policies in hospitals, for which I was interviewed.  You can listen online to this and other segments of the show.  My comments occur at about three minutes into the segment on Advance Directives.
• Managed Care Clearinghouse Home Page
National clearinghouse on managed care and tong-term supports and services for people with developmental disabilities and their families
• Medicaid Managed Care Contracts: An Advocacy Checklist for People with Disabilities
• Medicaid for people with developmental disabilities  
  Information about Medicaid for people with developmental disabilities from TheDesk.info, the Medicaid  Reference Desk.
  
• Medi-Cal Home Page  
  
• Medicare and People with Disabilities (pdf file) 
This .pdf file (from May 2001) provides a valuable review of Medicare issues involving non-elderly people with disabilities.  To read this file, you will need to have Acrobat Reader on your computer.  Acrobat Reader 5.0 includes an interface for screen readers for the blind, but I'm not sure whether that is functional with files created in older versions of Acrobat.  You can download a free version of Acrobat Reader at <http://www.adobe.com/products/acrobat/readstep.html

• The Merck Manual of Medical Information - Home Edition
  
A useful reference for general health information.

• Movement Matters
Movement Matters is the name of the interdisciplinary professional practice of Anne-Elizabeth W. Straub. It comprises her private psychotherapy practice, the Feldenkrais ®Center of Cobble Hill (her Feldenkrais® practice and the physical locus of Movement Matters), and a consultancy on disability/health issues.

• National Health Law Program Home Page
Home page for excellent program focused on health-care advocacy for low-income people and other vulnerable populations.

• NeedyMeds.com
The Place to Learn About Pharmaceutical Manufacturer's Drug Assistance Programs
• New England Journal of Medicine On-line -- Home Page
• Nursing Home Compare - Home
Information comparing nursing homes that contract with Medicare and Medicaid.
• Principles Protecting Medi-Cal Beneficiaries with Disabilities  
  This issue brief will take you away from LRM's Place. To return, use the back button on your browser.
• President Clinton's Patient Bill of Rights
• President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry
• RehabMall Health Directory
• State Health Facts Online
Kaiser Family Foundation web site offers state-by-state information on important health-care measures.

• A Triumph of Misinformation
  Atlantic Monthly article by James Fallows on demise of Clinton health-care plan.
  
• WebMD Article on Chronic Care 

MS Links

• All About Multiple Sclerosis 
Interesting, unofficial collection of information about MS.
• CLAMS (Computer Literate Advocates with MS)
• LaVonne's Flight of Fancy (Links)
This is the links page of LaVonne Murphy's personal web site.  Other interesting features as well.
• MS Association of America
Website of with the Multiple Sclerosis Association of America.  
• MSEN Table of Contents
MS information.
• MS Care
Contents page for International Journal of MS Care.
• MS Crossroads
Lots of information and links, both medical and non-medical, related to MS and living with MS.
• MS Views
• Multiple Sclerosis (IMSSF)
International MS Support Foundation
• Multiple Sclerosis Education Network - Beyond Tomorrow 
• Multiple Sclerosis Glossary Of Terminology
• Multiple Sclerosis Resource Center at HealingWell.com
This site appears to be a good resource, but it has features that may be difficult for users of screen readers for the blind to access, and there doesn't appear to be a text only option.
• National Multiple Sclerosis Society
• National Multiple Sclerosis Society - Sourcebook
Information on multiple sclerosis indexed alphabetically and by topic.  Also includes links to National MS Society publications.
• People With Multiple Sclerosis

Voter Information and Registration Resources

• The Democracy Network
• DNet | California
• Americans with Disabilities for Democracy
• Issues2000.org - Candidates on the Issues
Good information and resources on Election 2000 and many public issues. Includes "Vote Match" survey allowing visitors to see how their views match up with those of major candidates.  May be updated for future elections.
• NetVote '98
This site was set up for the 1998 elections but may have registration information that is useful at any time.
• Politics1- The #1 Net Guide to American Politics, Candidates & Parties
• Project Vote Smart - A Voter's Self-Defense System
• Uproar: UP web site
Web site of the Unique People's Voting Project, a registration and information program for voters and prospective voters with disabilities.
• Vote 2000
• Web White & Blue - Election Information

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Web-Related Links

• Civic Resource Group Web Site
Research brief and resources on web site accessibility.
 
• Data Fellows Anti-Virus HOAX warnings page
Check out virus warnings, chain letters, etc.
 
• Website Accessibility Sites
• CAST: Bobby
• W3C Web Accessibility Initiative (WAI) Home Page
• UsableNet - Website Testing Systems   
  

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