~~Kaitlyn~~ and ~~Jeremy's~~
(Taken May 2004)
Hello!! This is Jeremy and
Kaitlyn Jones. We live in St.
John's, Newfoundland, Canada. They were born July
12, 1997 at 27 weeks. Jeremy was the first born and the biggest of the two weighing 2 pounds 8 1/2 ounces and
Kaitlyn weighted 2 pounds 6 1/2 ounces. They both have had numerous
surgeries. Some of them include a PDA (Patent Ductus
Arterious) closure and Kaitlyn has a VP shunt.
That has been revised twice since birth. They both have Hydrocephalus
with a Grade 4 bleed. Jeremy was diagnosed with mild Cerebral Palsy and
requires AFO's (braces) to walk. He was also in
Serial Casting for
two weeks (Sept-2000) in a prolonged stretch. He had the Botex injections (Jan 17-2001) in St.
John's and again March 1st, 2002 in Montreal. Jeremy was found through a
sedated ABR to have a mild hearing loss in both ears and was fitted for hearing
aids. Update on Jeremy's hearing (Aug 1, 2001)... he was found thru a
hearing test at the Janeway Audiology
that his hearing has gotten worse, it's been upgraded to moderate to severe
with hearing loss of 50 Decibels up to 90 Decibels in both ears. He has had
four bilateral ventilation tube surgeries, the last one being Sept 10/02.
Jeremy started attending the School For The Deaf full time in August/01. Update: OCT/2002 - Kaitlyn
started Kindergarten in September, 2002!! Jeremy started Kindergarten -
Grade 1 in August/02. Jeremy was shunted June 2003. January 15, 2004, Jeremy had a surgery called
Dorsal Rhizotomy. You can continue on
reading about our story as you go through our WebPage.
Our Mommy says that we are very "special" children and no matter what
we will always be loved. Please "bear" with us, we are in the
process of updating! :)
Jeremy Jones - School for the
4 years old
Recent family picture June 2002
"Just Another Day"
(a must read for stay-at-home mothers)
(added Feb 2001)
Poem written for mothers of handicap
it has touched
my heart, hope it touches yours :)
In Memory of Our Grandfather
Passed away Feb 14, 2001
(left) and Kaitlyn (right)
born at 27 weeks, July 12, 1997
Updated Jan - 2001
Our Mommy and
Friends and Family
For so long I hoped, prayed and dreampt of the day
you would come to share our lives. Then on the day you were both born my heart
filled with such joy and love I thought it would burst. In the days following your
birth my soul filled with so much fear and worry it seemed it would
after what seemed like a lifetime, the day came when I got to hold you both and
I felt your tiny heart
beat next to mine.
I felt a peace I had never known. I knew we would survive. I have
already learned so much about life from you. You taught me every
moment is precious, every soul should be cherished, prayers are answered and
miracles do happen.
I want to thank you for choosing your father and me to share this life
with. I look forward to everyday we have to spend together.
Love Forever, Mommy xoxo
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Kaitlyn and Jeremy Jones