FIBROMYALGIA INFORMATION RESOURCE LIST

Organizations


Arthritis Foundation
National Office
1330 W. Peachtree St., Suite 100
Atlanta, GA 30309
"Arthritis Information (booklet) Fibromyalgia."
1-800-568-4045 (Request information at no cost)
E-mail:
HELP@arthritis.org
Website:
http://www.arthritis.org

The Arthritis Foundation
Southern Maryland Chapter
(check with your local branch)
1-410-544-5433
(Annapolis Fibromyalgia Support Group meets the 3rd Monday of every month.)

National Chronic Pain Outreach Association
7979 Old Georgetown Road, #100
Bethesda, MD 20814-2429
1-301-652-4928
Quarterly newsletter on chronic pain

The National Arthritis, Muscoskeletal, and Skin Diseases
Information Clearinghouse
9000 Rockville Pike
Box AMS
Bethesda, MD 20892
1-301-495-4484 (Barbara Weldon)

National Fibromyalgia Partnership, Inc. (NFP)
[Formerly known as the Fibromyalgia Assoc. of Greater Washington (FMAGW)]
140 Zinn Way
Linden, VA 22642
1-866-725-4404 (Toll Free)
Fax: 1-540-622-2998
E-mail:
mail@fmpartnership.org
Web Site:
http://www.fmpartnership.org
Quarterly newsletter, "Fibromyalgia Frontiers", source of latest information on FMS & research.
Membership, $25/yr.

Fibromyalgia Association of Florida, Inc.
P.O. Box 14848
Gainesville, FL 3260-4848
1-904-373-6865

National Chronic Fatigue Syndrome & Fibromyalgia Assoc.
P.O. Box 18426
Kansas City, MO 64133
1-816-313-2000 (24 hr. information line)

Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751-1750
1-520-290-5508
fax: 1-520-290-5550
WWW:
http://fmnetnews.com
Newsletter (Fibromyalgia Network), educational materials

Seattle Fibromyalgia Association
P.O. Box 77373
Seattle, WA 98177
1-205-362-2310
Educational materials.

Fibromyalgia Association of Texas, Inc
5650 Forest Lane
Dallas, TX 75230

CAN (Activist group for CFIDS & FM)
PO Box 345
Larchmont, NY 10538

Centers for Disease Control (CDC)
Division of Viral Diseases
Building 6 - Room 127
Atlanta, GA 30333
1-404-639-1338


Publications


Trigger Point Book:

Book/chart "TRIGGER POINTS: UNDERSTANDING MYOFASCIAL PAIN AND DISCOMFORT." Illustrated with drawings of muscle groups and indications of trigger points both within and outside the area where they cause pain. Also includes non-repetitive stretches for relieving some trigger points. 11"x14" spiral bound at the top and includes an easel-like stand so that you can have the chart visible while you are working on the trigger points. Pacific Spirit, 1-800-634-9057. Item number BOTPB, $39.95 plus shipping.

"FIBROMYALGIA AND CHRONIC MYOFASCIAL PAIN SYNDROME: A SURVIVAL MANUAL." By Devin Starlanyl, M.D. and Mary Ellen Copeland, M.S., M.A., 1996, ISBN 1-57224-046-6. $19.95, also available directly from the publisher in California, at 1-800-748-6273.

"FIBROMYALGIA: A COMPREHENSIVE APPROACH - WHAT YOU CAN DO ABOUT CHRONIC PAIN AND FATIGUE." By Miryam Williamson. Walker & Co., 1996, ISBN 0-8027-7484-9. At bookstores in early June 1996, or from the publisher at 1-800-289-2553.

"FIBROMYALGIA: MANAGING THE PAIN," by Mark Pellegrino, M.D. Published by: ANADEM Publishing, Columbus, Ohio. $14.95; call 1-800-633-0055.

"COPING WITH FIBROMYALGIA (Fibrositis)," by Beth Ediger. Foreword by Don L. Goldenberg, M.D. A handy guide that covers diagnosis, symptoms, current treatments, coping skills - and where to find out more. 38 pages. $7.50.

"WHEN MUSCLE PAIN WON'T GO AWAY," by Gayle Backstrom with Dr. Bernard R. Rubin. The Relief Handbook for Fibromyalgia and Chronic Muscle Pain. Revised and updated edition, 1995, 185 pages, $12.95. Taylor Publishing Co.

"WE ARE NOT ALONE, LEARNING TO LIVE WITH CHRONIC ILLNESS," by Sefra Kobrin Pitzele. A book offering hope courage humor and practical tools for coping with chronic illness; available at most bookstores.

"DISEASE OF A THOUSAND NAMES," by Dr. David Bell.
Pollard Publications
PO Box 180
Lyndonville, NY 14098
($19.95 plus postage and handling)

"STRETCHING," by Bob Anderson. Stretching exercises for everyday fitness and for specific activities such as walking, bicycling, and swimming. Available at most bookstores.

"SICK AND TIRED OF FEELING SICK AND TIRED," by Paul J. Donoghue, Ph.D. and Mary E. Siegel, Ph.D.
W.W. Norton & Co.
500-5th Avenue
New York, NY 10110
Dept. JWB
-or-
1-800-233-4830

"THE ANATOMY COLORING BOOK," by Wynn Kapit and Lawrence M. Elson. It has drawings of the human body with all its muscles and nerves, and explains why sometimes it doesn't hurt where the trigger points are, but somewhere else (pain referral). Helps to know which muscles to work on, when. $12.00 U.S. and $15.00 Canadian.

"MYOTHERAPY: BONNIE PRUDDEN'S COMPLETE GUIDE TO PAIN-FREE LIVING," By Bonnie Prudden. $16.00.

"COPING WITH FIBROMYALGIA" ($7.95) or "FIGHTING BACK" ($6.95)
LRH Publications
Box 8, Station Q
Toronto, ON, M4T 2L7 Canada
(These booklets/prices include postage and handling)

JOURNAL OF MUSCULOSKELETAL PAIN, a peer-reviewed medical journal; edited by: I. Jon Russell, MD $28.00 / yr; published by
Haworth Medical Press
10 Alice Street, Binghamton, N.Y. 13904
1-800-722-6362

"Acute Pain Management in Adults: Operative Procedures (Quick Reference Guide for Clinicians)" AHCPR Pub. No. 92-0019. To receive a copy, call 1-800-358-9295, or write to:
Department of Health and Human and Services
Public Health Service
Agency for Health Care Policy and Research
Executive Office Center
2101 East Jefferson Street, Suite 501
Rockville, MD 20852.

Pamphlets available from the Arthritis Foundation:
Fibromyalgia, Coping with Pain, Coping with Stress, Coping with Fatigue, and many others.
Arthritis Foundation
Southern Maryland Branch
1-410-544-5433
or call your local branch of the AF.

National Institute of Health "Backgrounders," provided free of charge by the various institutes at NIH. A collection of articles.
Backgrounder - Fibromyalgia call 1-301-495-4484.

FYI TIDBITS NEWSLETTER
Compiles information such as books, videos, relaxing music, email computer talk, announcements, etc. you can send a SASE with $1.00 to:
Nancy Medeiros
11237 Paseo Montanoso #66
San Diego, CA 92127-5919
For questions, you can email me personally at: nancym@coyote.csusm.edu

FIBROMYALGIA NETWORK
P.O. Box 31750
Tucson, AZ 85751-1750
Phone: 1-520-290-5508
Fax: 1-520-290-5550
WWW:
http://fmnetnews.com
Quarterly Newsletter published by American Fibromyalgia Syndrome Association, Inc. (AFSA). Source of latest information on FMS & FMS research.
Other publications also available:

Also available:

National Fibromyalgia Partnership, Inc. (NFP)
[Formerly known as the Fibromyalgia Assoc. of Greater Washington (FMAGW)]
140 Zinn Way
Linden, VA 22642
1-866-725-4404 (Toll Free)
Fax: 1-540-622-2998
E-mail:
mail@fmpartnership.org
Web Site:
http://www.fmpartnership.org
Quarterly newsletter, "Fibromyalgia Frontiers", source of latest information on FMS & research.
Membership, $25/yr.

More Newsletters:

Suncoast FM Support Group
Publishes an e-mail newsletter for CFS/FMS/MCS/Lyme Disease patients.
Interested persons can ask to be included by writing to
marilynk@tampabay.rr.com.

Kristin Thorson
FM Network News
P.O. Box 31750
Tucson, AZ 85751-1750
1-520-290-5508
WWW:
http://fmnetnews.com
Subscription rate is $19.00/yr. USA
Canadian Residents $21 US funds-money order
Outside North America $25 U.S. funds.
Free information pamphlet

Joan Wackerly
The Florida Fibro News
PO Box 1484
Gainesville, FL 32604-4848
1-904-373-6865
(Subscription rate is $15.00/yr. USA)
Free information pamphlet

Karen Samuelson
FM Association of Texas, Inc.
5650 Forest Lane
Dallas, Texas 75230

KOFF, Inc. (Kansas Outreach)
Rebecca Robbins
1216 Appleton
Parsons, KA 67357
1-316-421-3881

National Chronic Fatigue Syndrome & Fibromyalgia Assoc.
P.O. Box 18426
Kansas City, MO 64133
1-816-313-2000 (24 hr. information line)
$25.00 for a 1-year subscription (4 issues).


FOR THOSE OF YOU WITH INTERNET ACCESS

The FM Association of BC (British Columbia) is now online and available as a resource. If you have Mosaic or Netscape you can connect via:

http://204.244.17.10

They are also Telnet and FTP accessible via I.P. 204.244.17.10
At present they have just over 275 CFIDS/FM files available.

Last Updated 03-Mar-2006.

Web page design by Bill Jackson, 1996.

Any comments? Send them to Bill Jackson at cfsdays@yahoo.com

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